Month: December 2023

Cervical Dystonia Update 27th July HD 1080p This is an update on my personal journey with cervical dystonia. In this video I talk quite a bit about the non-motor symptoms that are a bit less obvious than the head pulling that everybody can see. Things like anxiety, depression and sleep problems. https://www.youtube.com/watch?v=EUoUEmDtqNA&t=2s

Shame and Dystonia Thoughts on shame & feelings of worthlessness and how they relate to my cervical dystonia. Sometimes the dystonia stirs up these feelings. Maybe those deep down long-held feelings even contributed to or exacerbated the dystonia. https://www.youtube.com/watch?v=cFJBPwzExxg

Cervical Dystonia update two weeks after third Botox treatment. Two weeks after my third Botox treatment for cervical dystonia and some benefit but still a ways to go. Trying to figure out how to get a haircut and go to the dentist with a head twisted to the side. Hmm. https://www.youtube.com/watch?v=K0XlAhZkWrk

2 June Update – Pain, Finding Meaning This is my fifth video about my journey with Cervical Dystonia. In this video I talk about pain (and my frustration for those who have their pain dismissed), sleep disruption and discovering new connections and meaning as a consequence of dystonia. https://www.youtube.com/watch?v=eQOugqqXUBc

Cervical Dystonia – Painful Lessons – Video 4 HD 1080p This is my fourth video about my journey with Cervical Dystonia. In this video I talk about a minor accident I had on my motorbike and the physical and psychological pain that came with that. I talk about the grief of losing parts of your…

Cervical Dystonia – Quick Update on my Journey My 3rd video on my journey with Cervical Dystonia. And nothing much is changing. It’s a whole lot of…. sameness. Waiting for something to change. https://www.youtube.com/watch?v=XoZtr66I9nw

Symptoms & Impact of Cervical Dystonia – Personal Perspective I’m a 47 year old man living with severe Cervical Dystonia. This is the second of a series of videos where I’ll share my experience of what it’s like to live with this neurological disorder. In this video I talk about the timeline of symptom development…

Cervical Dystonia aka Spasmodic Torticollis – Personal Perspective I’m a 47 year old man living with severe Cervical Dystonia. This is the first of a series of videos where I’ll share my experience of what it’s like to live with this neurological disorder. It causes me significant disability and severe pain which has meant I’m…